Coalition for Young Adults living with Chronic Medical Conditions and Disabilities

PPC convened the first meeting for the Coalition of Young Adults Living with Chronic Medical Conditions & Disabilities in June 2009. Some of the coalition members met to provide input for the white paper.

Member Organizations

Allergy & Asthma Network Mothers of Asthmatics Sandra Fusco-Walker, Director Patient Advocacy

American Academy of Developmental Medicine and Dentistry Matt Holder, MD, MBA, Executive Director

Association of University Centers on Disabilities Kim Musheno, Director of Legislative Affairs

Autism Society of America Jeff Sell, Esq., Vice President, Advocacy and Public Policy

Genetic Alliance Andrea Cornell, Advocacy and Health Policy Coordinator and 
Alyson Krokosky, MS, Genetic Information Coordinator

Maryland Chapter, American Academy of Pediatrics Eric Levey, MD

M2 Health Care Consulting Brenda Gleason, President
Jo Palmer

National Down Syndrome Society Madeleine Will, Director, National Policy Center

Physician-Parent Caregivers Santi KM Bhagat, MD, MPH, Founder & President

Renal Support Network Lori Hartwell, Founder & President

Special Olympics Matt Holder, MD, MBA, Global Medical Advisor

UNC Transition Clinic Maria Ferris, MD, MPH, PhD

Professional Members

Clarissa Kripke, MD Family and Community Medicine, University of California San Francisco

Paul Lipkin, MD Director of Center for Development and Learning, Kennedy Krieger Institute

John Reiss, PhD Associate Professor of Pediatrics, Founding Faculty Member, University of Florida’s Institute for Child Health Policy

Gregory Sawicki, MD, MPH Associate Director, Cystic Fibrosis Center, Children’s Hospital Boston

Paul Strumph, MD Med-Peds, Adult and Pediatric Endocrinology

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